Hello mates, I hope you all have been nicely and that you are kicking off summer months in the very best way doable!
So quite a few of you have achieved out to check with how Dominic is executing and when I share a swift image on Instagram tales often, I preferred to pop in immediately to give you an update.
Considering the fact that I very last wrote, Dominic has concluded cycles two and 3 of chemotherapy. Both built him sick one particular day of the therapy but with a tweak of the nausea meds, he was experience improved.
His new most loved in-healthcare facility activity? New music treatment! He gets these a huge kick out of taking part in the devices 😁
He is also Incredibly into every day bingo 😍
On the very last day of his next cycle, he had the possibility to tour the helicopter pad on the healthcare facility roof, which he Cherished. The watch was wonderful and we realized a lot of fun points (mom enjoys a fantastic field vacation, ha)!
Whilst property, he carries on to engage in and fairly substantially enjoys existence as regular, together with loads of outside time now that it’s great out!
Concerning rounds two and three of chemotherapy, we traveled to New York for Dominic to be viewed at Memorial Sloan Kettering, exactly where they have a group of pediatric oncologists who specialize in neuroblastoma.
He is remaining treated below their advice, so much acquiring all of his chemotherapy here in Pittsburgh, but we will vacation there for his tumor removing operation.
We both of those experienced our initially Uber ride, experienced Shake Shack for the initially time (SO Great), and Dominic experienced his very first keep in a lodge. A profitable vacation, but there is definitely no spot like home!
Our New Regular
We are getting pretty used to the signs of minimal hemoglobin (two days in a row of having more consume breaks than typical although actively playing exterior? We guessed he was likely to need to have blood when he went to his clinic appointment the subsequent working day and, positive plenty of, he did) and reduced platelets (extra bruising). He has experienced multiple transfusions of both of those because starting this journey, so a great major thank you to anybody who has ever donated blood, as we are now so substantially far more acutely conscious of the importance of this selfless act.
Hemoglobin, platelets, white mobile counts, neutrophils, and ANC quantities are now just frequent dialogue here.
We’ve all kind of settled into our new regimen of solutions, excursions to the medical center, handling medicines, line flushing, and so on.
The major hurdle because this very last cycle of chemotherapy is that we have had to give Dominic daily shots (vs the a person-time photographs just after the initially and 2nd rounds) and it is the complete worst. He has constantly hated shots and he just dreads them, I get anxious, and it’s just a total SCENE. The everyday photographs were being used mainly because of his approaching stem mobile harvest, to make certain his counts have been sturdy (see under).
This coming week, Dominic will have a stem mobile harvest, where they will insert a short-term line to extract stem cells (which will then be saved) should really he require them in any ability all through procedure down the street. It is our hope that he would not, but they will be there if he does.
The next large phase is in two weeks when he will have his tumor removing surgery. Subsequent the surgery, he will have yet another spherical of chemotherapy and then a couple weeks soon after that, a battery of checks and scans to see where we stand with the sickness.
You should continue to pray that the cancer is responding to treatment, that the surgeons are in a position to take away the tumor safely and effectively, and that he has a somewhat simple restoration.
Pleasurable at Home…
A couple of a lot more shots of the kids from latest months ❤️
Wishing you all a enjoyable and protected begin to your summer time! ☀️❤️